Intangible, Yet Invaluable

One of my favorite things (quite possibly my MOST favorite) about having a support group like our local group, Tyler Type One, is the real life, “warm body” support.  The education and resources it provides are absolutely wonderful, but it’s the relationships that really make this group such a valuable part of our daily lives.

This past Thursday, at our monthly support group meeting, we had a Certified Diabetes Educator come and speak to the group.  Her presentation was great and I heard many people express that they had learned a lot.  This alone was worth the price of admission!  (Which, by the way, is FREE.)   But, it’s what happens after the meeting that I always look forward to.

At one point I was chatting with one of our new families who also have a diabetic toddler.  While we were standing there, Ruby alerted, so I checked Faith.  Their little boy was watching and the mom mentioned how good it is for him to see another child getting their blood sugar checked.  It can be such a source of comfort and confidence for these kids to see other’s that go through what they go through.  It’s the little things like that that sometimes have the biggest impact.

Later that night, I was visiting with another mom and she was sharing how invaluable and uplifting it is for her to come to the meeting and be around other type 1 families that “get it”.  We were sharing how it just fills us up to “go back at it” for another month, and one of the words she used was “intangible“.

Intangible.  That’s perfect.  When I’m telling others about our support group, and describing what a difference it has made in my life, it can sometimes be hard to articulate.

For sure, Tyler Type One is fantastic for the tangible, practical help & supplies – but, you just can’t put a price on the invisible, intangible benefits of meeting with and getting to know others that understand and live with the same day to day struggles.  For many of us, type 1 diabetes is the only thing we have in common – yet, we find ourselves bonding on a very deep personal level.  It means the world to have someone to call or meet for lunch when it all gets to be too much.

You can read all the books, and connecting online is great – but there’s just something about real life support that’s intangible, yet invaluable.

Because, Every ONE Needs Support.

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Diaversary

At different times throughout my life I’ve kept a prayer journal.  I love to do this for many reasons.  The writer in me loves to pour my heart out that way, and the doubting Thomas in me needs to go back and see in black and white how God has been faithful to answer my prayers.  I read back through things that I was praying so hard about a year ago and often I don’t even remember those burdens.  I can see that God saw us through that time and it helps me keep perspective in whatever I’m going through currently.

I think this is one of the reasons why Faith’s 1st Diaversary (one year anniversary of Faith’s Type 1 Diabetes diagnosis) hit me so hard.  It hurts to realize that the things you were praying so hard for a year ago are still what you are battling and praying for today.  This doesn’t mean that I can’t see that God has carried us through the last year – He absolutely has – but, it is still a sobering reminder that this diabetes thing isn’t going away any time soon.

My friend, Amy, asked me the other day for ideas on how to celebrate her son making it through his first year with diabetes, and I had no suggestions for her.  I cried for two solid days when we reached the 1 year mark with Faith, so I am not the person to ask for ideas on how to celebrate life on your diaversaries.  I am not there yet.  I am not at a place where I feel like celebrating diabetes.  I’m not saying that I don’t think we should celebrate living another year in spite of diabetes, just that I personally wasn’t feeling very celebratory on our 1 year anniversary of Faith being diagnosed.  Maybe that had something to do with the fact that it came before her 2nd birthday.

Recently, my family and I went to see one of Amy’s sons, Justin, play in his Little League State Championship tournament.  We met his family at our Tyler Type One support group, and have grown to love this family over the last few months.  Justin has a special affinity for Faith, and she feels the same way.  You should hear these two talk on the phone!  Too cute.

Justin even had a shirt with his number made for Faith to wear to his game. 🙂

Justin plays 1st base and he’s awesome!  You surely couldn’t spot diabetes anywhere on the field when he was playing!   He definitely doesn’t let it hold him back!

Justin’s team went on to place 3rd in State, and they go on to play in the Dixie Youth Nationals tournament next week!

Guess what else happens next week?

Justin’s 1 year Diaversary!

Is there a cooler way to celebrate LIVING in spite of diabetes than playing in the World Series??

We are SO proud of you, Justin!

Amy, thank you for equipping Justin to LIVE!  You are both such an inspiration to all of us!

What about you?  Do you acknowledge your Diaversary?  Do you celebrate each year?  If so, share your ideas with us!

Because, Every ONE Needs Support!

Mishaps Happen

How’s that for a title?

I heard recently from another mom who was so disappointed in herself for running out of diabetic supplies for her child.  She was able to run to the store at the last minute, and pick up what she needed – averting the crisis – but of course she still felt bad about it.  I can so identify with her guilt over such things, but it wasn’t long before several of us jumped in there with our horror stories and reassured her that we’ve all been there.

I think my all time worst goof up was the time my oldest son was in a competition in Dallas.  We were staying in one hotel, and the competition was in another.  We get checked in to our hotel, freshen up, and then drive (through Dallas traffic) to the competition.  As valet is getting in my vehicle to pull away, I realize that Ruby is alerting and I can’t find Faith’s bag.  I ran to the valet, searched through the car, and quickly realized that I have ZERO diabetes supplies with me.  (We weren’t in my personal car or at least I’d have had backups)  I have no meter, no sugar, no glucagon – and a child that can’t tell me if she’s feeling low.  I leave my son with his team, load Faith and Ruby back up in the car and drive back through Dallas traffic, crying like a baby and terrified that I was going to get caught in gridlock.  By the time I got to her bag and checked her blood sugar, she was in the low 50’s.  I gave her a juice and headed back to the competition, getting there just in time to totally miss JC’s competition.  I sat outside the room feeding Faith’s low and feeling like the worst mom EVER.

If that’s not enough to make you feel better about the job you’re doing, I could go on and tell you about the time that we totally lost Faith’s insulin…back when she was on specially diluted insulin and MDI.  We ended up finding it in the front yard – AFTER Chuck stepped on it.

Or the time I changed a bad site at 2am, but forgot to fill the canulla.  I didn’t realize it until hours later – causing a high bg, small ketone, but easily fixable issue to turn into a HIGHER bg, LARGE ketone, miserable baby, sleepless night issue.

I really could go on, but a girl can only embarrass herself so much in one post, right?

I’m throwing myself under the bus here in hopes that you’ll cut yourself some slack.  Allow others to see that you’re not perfect.  Maybe they’re beating themselves up and it would do them some good to see that we ALL make mistakes.

There’s just so much to remember when you’re managing diabetes, we’re bound to mess up occasionally.

Right??

Tell me y’all have done this too.

Because every ONE needs support.